Well i must say I am getting a bit tire of doctor visits. So trying to hunt down the pain and see if I can stop it The latest theory, which I believe. I have fibrosis on the side of my neck where the most radiation was targeted. It is quite stiff, 4 years out. MRIs show no impediment of nerves out of the spine...very good. But the fibrosis is squeezing a nerve when I put my head is a certain position. The rx is botox injections. There is a Dr at cedars sini in NYC, dr stubenfield who has a lecture on line abut this.
I am on a fence, the pain is a pain! But I have not heard of any OCF folks mentioning it.
I will let you know what happens.....
Steve
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
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