Sorry for your troubles, Steve, and have not experienced this long term with any of my neck dissections. Coud be Lhermitte's (sp) is when the standing the chin is bent forward to the chest, a shock goes through the body to the feet, and fortunately do not have this either.

FYI, there is no Cedars-Sinai in NYC, but have one in Los Angeles. In NYC it's Mount Sinai, and did not see a Dr. Stubenfield there from their listing, but doesn't mean he's not, being he's new or other reason, like doing a lecture, and is not on staff.

Good luck, and hope you find relief.

10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs