 "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Kimberly:
First off, welcome to the forum. I'm torn between responding and not responding as I know you are looking for someone with your same diagnosis.
But, even if you don't find that someone, I'm sure someone here knows something about your cancer that can help you.
Regardless of whether it's the same cancer as you, we all either have some type oral cancer or are caregiver to someone who does. That means we are very supportive because we have all felt what you feel. Even if you just need someone to listen, we are here.
Hang in there.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| 
