Hi,
My name is Kimberly; I'm 40 yrs old and live in North Texas. I was diagnosed with salivary gland cancer May 9, 2013. I've since completed 35 rounds of radiation August 10. I've had my 30 day follow-up and now I'm waiting for my next appointment for cat scans in December. Not knowing whether or not the treatment has worked, this wait is tormenting! I haven't been given a prognosis, the Dr. said this is a type of cancer that like to come back so it's a wait, see and keep watch thing. The type of cancer I was diagnosed with was mucoepidermoid carcinoma of the sub-lingual gland with peri-neural extension. I've read that it's especially rare for cancer to start in this particular gland not to mention the rarity of any salivary gland cancer all together especially at my age...I'm mentally exhausted with all of this. I have yet to meet anyone with this same diagnosis and not having anyone to offer hope is frightening. Is there anyone here that has received the SAME diagnosis and has beaten this monster? I know each case is unique, I just need to know I'm not alone...


Last edited by RareJewel; 10-14-2013 10:46 AM.

Kimberly

1/2013 Skin rash biopsy Dx-Pityriasis Rubra Pilaris
CT 2/2013 tumor on floor of mouth (ordered by dermatologist due to biopsy findings)
5/8/2013 ENT RT Submandibular Gland and Partial RT Sub-lingual Gland removed
5/9/2013 MEC of sub-lingual salivary gland with peri-neural extension
6/10/2013 RO IMRT 5 days a week for 7 weeks. Ended 8/10/2013
7/6/2013 Home care Intake (OT,PT,ST)
7/11/2013 PEG Tube insert
7/19/2013 PEG Tube removal...severe infection hospitalized
9/5/2013 F/U RO
12/5/2013 CT?