Welcome, but sorry that you had to join. Before cancer, I never went to any support group, FB, and didn't join one until a year after cancer in 2010, and here just a year ago, which makes all the difference since I felt like the lone ranger, and didn't know or speak to anyone about my type of cancer, which is tonsil or oropharyngeal cancer. It's good to do so, and hear all the different input, support, and up to date medical news, procedures.

You're not the only one who had difficulty with the mask. Some take anxiety pills to help. I didn't, but not saying I couldn't use them, but the pain pills I was taking helped. If I didn't have cancer, I would have went for a stiff drink right afterwards lol. Some play music or can bring your own cd disk to play, some meditate, use visualization. I counted my zaps to keep track, know when I was nearly finished. Whatever helps get you by use it. It does get easier after a while. I kept a wall calendar at home, and after each day put a big X in the box, which somehow help get me through.

The tongue depressor is used to keep your tongue immobile since you are getting the most radiation in your mouth, so it doesn't interfere with the radiation direction or keep zapping your tongue.

Good luck.



10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs