 "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Hi Cindy,
Years ago I had 3 golf ball sized lymph nodes removed from my left armpit. Short story is they said I had lymphoma. One biopsy in my clavicle area came back negative. A few months later I still didn't feel well so they did more Cts only to have it look worse. Did a PET and said it was stage IV so they removed those nodes. They all came back negative too. After that I said leave me alone! Anyway, all that to say I do have some lymphedema in my left arm, but it's not too bad and only flares up now and then.
Good luck with this.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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