 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Cindy,
It is so difficult reading your post. You are absolutely right...it just isn't fair! I am so sorry to hear the latest news. I would gladly trade places with you if it was possible. I have lived a full life and have no regrets and nothing left I want to do. Unfortunately, it isn't quite so easy.
Try to not get ahead of yourself. Let things unfold before you change much in your life. In my case, cancer coming back has not been a worry although I now have multiple terminal diagnoses...all from radiation damage. I could sit around and wonder which one will take me first but I try to just keep on living.
My family doctors did not want me to have a FNAB for a lymph node under my chin that has been cooking for 2 years now. I can't do any more PET scans because of muscle twitching head to toe. I had 4 specimens removed and they all came back negative. I don't think I will be doing any more scans or biopsies at this point.
My thoughts and prayers for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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