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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF Carol! I have sent you a private message (PM) as well. Please take a few minutes to review the messages. Take a look towards the top of the page in the center next to where it says My Stuff and click on the flashing envelope. From what you wrote, I would highly recommend taking him to a large CCC. Luckily you have a major CCC right in your state, Moffitt is one of the best. Where you go really does matter! Especially if the case is complicated. You will want top doctors who have the most experience treating hundreds of similar BOT cancers. I see others have mentioned this to you so I will provide the CCC list in case you want to look further. List of Cancer Centers Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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