Thank you for responding Maria! The appointment today is in central Florida. I hear and read very good things about them, and I have had one family member treated there (prostate cancer).
We are anxious to hear what they have to say as far as the plan for treatment then perhaps go to Moffitt or even Shands for a 2nd opinion.
Tim is the love of my life, and I "found" him again 3 years ago at our 35th high school reunion. I will be by his side through whatever it takes!
This support group, in 2 days, has given me so much information, and hope. Thank you all for being here for us!!!
Carol

Caregiver to Tim(Best friend and love of my life)55 years young!!
Small BOT SCC (HPV+) with mets to 2 large and 1 "cluster" of right neck lymph nodes. DX 7/2013
Treatment started 8/2013. Completed 10/9/2013 IMRT 70GY over 31 days X2. Cisplatin X3 No PEG.
PET Scan 1/15/2014 NO Evidence of Disease
5/18/2015 NED with follow up visits to oncologist and Radiation oncologist every 3 months.
Cautiously Optimistic and starting on the journey to recovery!