 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I have had a reverse osmosis drinking water system since the 80's. I drink a lot and it isn't cost effective to buy the stuff! When they told me how much I needed to take in during treatment I smiled and asked why I had to cut back. Our water stinks literally like fungus and tastes horrible even before treatment. Then they super chlorinate it to get the zebra muscles out of the supply side. I used to take 2 half gallon jugs to work every day. I was told that is why I have skin as soft as a baby's rear! Just believe me, please. O.o
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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