I haven't even started my radiation yet and I end up getting pretty wiped out around 3-4 pm myself. I think it's just the body still working overtime to heal up, and that takes much more energy than I thought it would. I have never slept so much in my life! It is certainly an adjustment. As for the PEG, did you receive a machine to pump it in or were you told to do it bolus? If it's bolus it's pretty straight forward, you can either directly push it in with the syringe, or take the plunger out and keep pouring everything in and keep it elevated and gravity will do the work. If it's a machine, I unfortunately have no idea how to use that. You are both in my thoughts.

Josh


Josh, 24, don't smoke/drink

5/29/13 Biopsy
6/3/13 DX stage 3 HPV- SCC at BOT
6/14/13 Hemiglossectomy, neck dissection, second surgery to add stitches
6/21/13 PEG
6/23/13 Incision opened to drain infection
6/26/13 Discharged from hospital
7/22/13 IMRT starts