 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jaqueline,
I had a different type of PEG tube put in called a "button" or a "MIC key". It only extended about an inch and had two types of extension tubes to put on, one for feeding and one for pure liquids like water or medicine. It also had a valve that prevented the tube from flowing the wrong way and eliminated some of the not so pleasant oozing on my clothes. The button was much easier to ride the bike and excercise since it was out of the way all the time.
You are in my thoughts and I truly admire you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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