Hi all of you,
I just wanted to present myself here. I am a 23 year old girl from Holland, named Jaqueline. I do not knwo the specific english words for my deseases but let me try to explain. I had cancer of my tongue a few years back and had a partial glossectomy. This seemed to be the right thing back then, but about 1,5 year ago the cancer returned...big time...
And this tim also further back in my thongue. What followed was a radical glossectomy, but preserved my larynx at first, because they thought that a young woman lik me could handle teh problems of not beiing able to swallow... But off course, as you can guess, I could not. So not later then a month afterward they also did a laryngectomy on me. At first I found it devastating...Now I even was not able to produce sounds at all... And breathing threw a whole in the neck is not really what a girl in her late teens wish to have wenn starting to develope... (especially since that is not my only handicap, but starting about this subject is probably off topic here)
Now, almoast 2 years later I did sorten out my life and I have started a relationship. My partner exepts me for who I am and is very supportive. We communicate threw signlanguage.
I only mis one thing and that is exchanging info with other glossy/larry patients like me. And don't get me wrong, but I would apreciate reactions especially from younger girls or boys, cuase as it looks like, I am the only youngster with both these problems...Only heard of people who are older then me having this "problem", but off cours they are welcome to echgange info with me to...
many thanx Jaqueline