Hi Jaquelle,

I think I am the only total laryngectomy that currently posts to this board. I am totally sorry you have to face this at so young an age but it is a liveable condition and beats the alterative.
If you think having a hole in your neck needs to limit your wardrobe or options, have Danny Boy mail you a picture of me from the gathering or my sister's wedding. Two cancers, radiation, two neck dissections, total larygectomy, and I can still wear a dress with shoestring straps. Don't let this limit your life. Think positive.

I am more than willing to correspond with you on the particular problems that occur with us laryngectomees. If you wish to do this, please email me at [email protected] rather than using the private message board on the forum. You will get a response much sooner.

Do you have an indwelling TEP? What do you use to speak? My surgery was 3 years ago and I have an indwellin TEP.

I look fforward to be aable to help you in any way I can. Just email me.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I