 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im very sorry for your OC diagnosis! I was hoping you would be negative and not need our group. Since you will be sticking around for a while, we will be here to support you thru this.
Best thing to do is to start making a list, write down every single person who has offered their help to you. Take down their name and number, let them know when the time comes you will let them know what they can do. Even the small things like doing a couple loads of laundry or cooking your family a homemade dinner will be helpful when you arent feeling well.
Im glad to see you are being treated at a CCC. Will you be getting a second opinion at another CCC?
Hang in there! You will get thru this. We will be right in your corner rooting you on the whole way.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
