I'm so sorry to learn of your diagnosis. Tonsillar cancer was my second round with oral cancer.

They threw the sink at me. Mine was HPV-negative, which is rare when you don't have any known risk factors.

In my opinion, take the most aggressive treatment that your body can handle. I had bilateral tonsillectomies, followed by 35 radiation treatments, with weekly chemo. Yes, it sucked. I had an excellent support system. Yes, there were a couple of times I thought I would die, but I didn't. Yes, I was hospitalized quite a few times. Yes, I had a feeding tube. Yes, I still have side effects, but they are "doable" and I am alive and just returned to work after nearly a year. I have a lot to live for and I'm assuming you do as well. So, fight! Rely on us and your network that you and your family put together. Get that second opinion and do the next right thing.

I am coming up on my second post-treatment MRI w/contrast. Am I scared? Hell, yes! I hope that the kitchen sink worked and I hope it works for you, too.

Best of luck. Keep us posted. We are here for you.

Love in OCF,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!