[quote=Mamacita]
Andrew, exactly so -- Info from the surgery and further biopsy would determine whether chemo's needed. I hadn't heard that it's best to go with no more than two treatment types. Do you know why? I will find out the radiation dosages as you suggest. I was biopsied but don't know my
HPV status yet and haven't been fully staged. How are you feeling, two months post-treatment?
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My doctors just recommended trying to stick to a maximum of 2 treatment modalities based on the cumulative side effects. Each of the treatments has different long term side effects and its better to have less of those. Their view of the severity of long term side effects from least severe to most severe was surgery, chemo and radiation. They also told me there is not a survival advantage for having surgery and then radiation vs chemoradiation. For me, they were able to do a PET/CT and the surgeon determined that there was a decent chance that he would not get clean margins on the tonsillectomy. Therefore, if I opted for surgery, there was a decent chance I would need chemo as well.
I think I'm doing really well all things considered but everyone recovers at a different pace. I'm now 13 weeks out of treatment. My first PET is today (fingers crossed), which is why I'm home and able to post. I eat most things and am back to a normal diet. Taste is pretty decent, but fades sometimes with sweet foods. Acidic food is sometimes hard, but a lot of things have been getting better. I can eat pickles, tomatoes and mild salsa (although it feels like picante) which I coudln't eat earlier. I can eat sandwiches and bread (with drinks to accompany it), although its not my favorite food to eat anymore. I guess dry mouth isn't as terrible as I imagined for me, but I still hope for significant improvement. I'm back at work 10-12hrs a day, playing basketball, traveling and back to biking.