Many thanks for all the responses, especially ChristineB - it helps me put things in perspective. Apart from the pain,discomfort,deep anxiety etc that this condition brings I do feel cheated that I won't see and help my 4 year-old daughter grow up or enjoy another 30 years with my wife, when the true cause of my disease cannot be determined.
I know I've got to try and stay positive and this forum has been a true support for that.


50 yrs.Non smok.Mod drink.
Tongue canc SCC T2N0M0.
Surg. Jul '11 1/3 rd of tongue rem. & sel. neck diss.PEG fitted.
Aug '11 6 wks chemo/radio.3 more canc. nodes rem.
Feb '12 18 wks chemo.
Nov. '12 Mod rad neck diss on right, & pec flap rep. rem. of tumour under chin. More rad to follow in 2013.
**update** Passed away September 26, 2013