Hi RosyM,

Sore PEG site and a fever....Yes, it does sound as if the PEG may be infected. Can't hurt to do double duty cleaning with hydrogen peroxide and if it's not too painful, a flush or two as well. Good thing the docs are seeing you tomorrow.

As far as progressing too slow? You finished treatments two weeks ago. It took me close to four weeks to start eating again! No, if you're getting some food by mouth that's a good thing. When they did the tonsillectomy did they do biopsies too? The reason I ask is I have "divots" in the back of my throat from where they did biopsies (pretty big hunks of flesh too!) and food gets caught in them as they haven't filled in yet. It's "chew, chew, chew, chew, sip and swallow, sip and swallow" That could be a reason food is getting caught up in your throat.

Nutritional shakes definitely can help you shake the PEG. If you want to avoid the sugars, there are whey protein powders that are void of sweeteners. You can make your own meal replacement shakes. Protein powder, milk, fruit (vanilla ice cream) makes a pretty good shake. Just be sure to clear any supplements with your docs. My team was fine with me doing that. I order my supps from Nutrition Express www.nutritionexpress.com. They have a great variety at good prices and their service is excellent. I've been purchasing from them for over 10 years.

It's not unusual to have a lack of appetite. You're probably still on narcs right? They have a tendency to suppress appetite. Also, eating is different now. Something we did without really thinking has become in many cases a "job". You have to focus and concentrate as to chew enough and not choke. Taste or lack of is an issue too.

Hang in there! You're doing well with the eating. Hope that PEG issue is resolved quickly for you.

Positive thoughts and prayers

"T"