| | Joined: Apr 2013 Posts: 92 Supporting Member (50+ posts) | | Supporting Member (50+ posts) Joined: Apr 2013 Posts: 92 | PEG site became incredibly sore over night, running a low grade fever, and I generally just have not felt well for several days. My mother spoke with my gastroenterologist today (I still have no voice so I have to text my Mom and she makes my phone calls lol)and the nutritionist is meeting me at my RO follow up tomorrow to look at the PEG. He told my Mother that if it is infected I should prob go ahead and pull it, that frightened me, I am still getting 90% of my nutrition through my PEG. So that makes me wonder am I progressing to slow? Which brings me to my 2nd question. Is there anyway to increase my appetite? I have a few problems with eating, one is swallowing, sometimes it just doesn't go down wrong and ends up in my throat and I cough it up, that doesn't happen that often and it started happening after my surgery and I think its just because my throat was used to an over sized tonsil back there, now that its gone I am just having to figure out how to eat different. The other is a little pain with some food but its not bad. My main issue is I have no appetite, things sound good but as soon as I put them in my mouth I am not hungry and its all I can do to force a few bites down. Is this normal? Anything I can do to help it along? I haven't really forced myself to eat, it seems like such a hassle and I would just rather use the PEG which is very strange for someone like me who used to love food. And is there any nutritional shakes I can start making to maybe help me get off the PEG? i went to the health store yesterday but the 2nd ingredient in all their meal replacement shakes was fructose, I am not crazy about that, I am not a diabetic but I have noticed anytime I drink these shakes with high sugar a few hours later I am shaky and irritable, I have been that way all my life and it happened with food when I ate. Does anyone know where I can go to maybe order some shake and protein powder online where I may be able to find some variety?
Thanks!
AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers 3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13 rad end 5-29-13
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Infected PEG, no desire to eat
| rosymonroe | 06-12-2013 09:32 PM |
Re: Infected PEG, no desire to eat
| fishmanpa | 06-12-2013 10:21 PM |
Re: Infected PEG, no desire to eat
| julieann | 06-12-2013 10:21 PM |
Re: Infected PEG, no desire to eat
| Uptown | 06-12-2013 10:25 PM |
Re: Infected PEG, no desire to eat
| PaulB | 06-12-2013 11:14 PM |
Re: Infected PEG, no desire to eat
| ChristineB | 06-13-2013 12:38 AM |
Re: Infected PEG, no desire to eat
| donfoo | 06-13-2013 05:31 PM |
Re: Infected PEG, no desire to eat
| PaulB | 06-13-2013 07:02 PM |
Re: Infected PEG, no desire to eat
| donfoo | 06-13-2013 09:24 PM |
Re: Infected PEG, no desire to eat
| rosymonroe | 06-14-2013 12:24 AM |
Re: Infected PEG, no desire to eat
| ChristineB | 06-14-2013 03:28 AM |
Re: Infected PEG, no desire to eat
| Cheryld | 06-15-2013 02:00 PM | |
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