Thanks to all the replies. Special thanks to "T", what you said rang true and helped the most. I did not have any biopsy, the surgeon said there was nothing to biopsy, but what you are saying about the swallowing sounds exactly like what I am going thru. Also the comment about the narcs, I forgot that before my first surgery I lost some weight just because I was on narcs for the cancer pain and I had no appetite. I bought some protein powder, ice cream, fruit, whole milk today. I will try smoothies and shakes and start walking on my treadmill tomorrow. I will also check out the foods on that list Paul.

The nutritionist said it MAY be trying to get infected, the doc said no antibiotics and I was told to clean with hibiclens, keep dry, and half strength hydrogen peroxide twice a week and keep an eye on it. Very thank full they do not want to pull it, I have inserted many nasal tubes and it is not something I want to go thru, on top of that I am not sure how I could get to work and work with it in place. The nutritionist also told me what I am experiencing is not uncommon and assured me my desire for food would come back so I decided to try my best and stop stressing about it. I was very stressed about my progress and I am sure that wasn't helping with the appetite at all. My RO is really tough on me about eating and not loosing weight and had me upset about it. I have finally stopped loosing weight and I am sure the eating will come along soon. I think it is kind of funny how upset I used to get over not being able to loose weight and now I am twice as upset that I might loose more weight. I can still stand to loose 20-30 pounds but I know this is not the time to do it, the thing is I am not in any danger of being under weight.
Thanks again!


AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers
3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV
TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13
rad end 5-29-13