 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Chris,
Welcome to the neighborhood...the club nobody wants to join. My heart breaks for your son. As others suggest, find him whatever he needs to first process his tremendous loss and to help him prepare to deal with the loss of the life he is just starting to try to establish with you and your fiance.
I am sorry you are having to deal with this, too. Just remember, there are many that have traveled the road ahead and many that have and will continue to live in spite of this horrible disease. It hasn't been suggested yet but try to find a Comprehensive Cancer Center from the links on this site. Throw everything you can now to beat the beast and you will reap the benefits.
I will be praying especially hard for your son as well as you and your fiance. Take the time to enjoy the little things in life and the new life that is coming into this world because of you. I am hoping for the best for you and your family.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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