 "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Kris has had a PEG twice now. He is reluctant to have his removed. I think he thinks it will jinx him
It is fortunate that he has not had it removed as due to aspirating recently he is now having to use it again. Hopefully only for a few weeks.
I don't understand all the drama of should you shouldn't you ? It really is no big deal. Kris says it doesn't bother him at all. Mind you he has a Mickey which sits flat against the abdominal wall.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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