vik
I am one of those survivors that comes back and lurks once i awhile, but only posts occasionaly. My main reason is that although i was grade IV my treatment went pretty smooth. My main concerns were fatigue and starting to eat real food again. I saw some of the issues others were having on this site and i felt like i was doing pretty good. I think you will find that most of the 'OC activists' either had a hard time with their initial cancer or had a recurrence.

Christine is right. Most survivors get on with their lives after treatment and recovery. The questions i can answer are low hanging fruit, PEG, radition burns, fatigue and what to try to eat first. But, most of the 'regulars' on this site know those answers too.

It's been four years for me and i'm doing fine. I had base of tongue with lymph node involvement and no surgery.

It seems that since i've gone through this i've been introduced to someone who's had it, or had someone ask me to call someone who's got it, or told me about a friend who had OC or was diagnosed with OC at least a dozen times. None of them have had recurrences and all are alive. I met a pastor at a Christmas party and was talking to him about it and he showed me what was left of a neck dissection scar and said he had OC almost ten years ago.

People who have cancer DO have recurrences, but I don't know anyone other than the people i've met through this group or at the OCF marches that have had recurrences.