Hi,
Kevin is now about 16 months out of tx. So far so good. We do think about recurrence now and then. In the beginning we were fixated on it. What you are feeling and the worry is totally normal and understood.
There are MANY people on these forums who have not had recurrences. I wish I could think of names. The only one that comes to mind quickly is Davidcpa. His dx was very similar to Kevin's, so we are praying for the same outcome.
I know how hard it is, and no matter what we all say you are going to be terrified for awhile, but please try to relax a little bit. The success rate for HPV+ is pretty positive! We are counting on that!
Hang in there!!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14