Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | This is exactly why facebook chat groups can never take the place of established places like OCF. Too many sheep believe what they are told simply because 'somebody' said so. The internet is full of too many scams are out there to part patients from their money without regard to the patients medical problems, its all about the money. Facebook serves a much different purpose than OCF, its for friends to chat. Medical advice should come from reputable sources, unfortunately not everyone knows the what is reputable and what isnt.
Here on OCF, correct medical info is given. Both the posts and main OCF pages are read by experts to ensure only correct medical advice and information goes out. OCF complies with the Heath on the Net Code which has its own set of standards a website must meet to be part of this group. Facebook and the other websites cant be edited or corrected. If a person is looking for correct info choosing a site (like OCF) where its part of Health on the Net is the best decision.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |