OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | Yes. I saw your posts. I was the one who said No! No! No! That's why people need to go to the OCF website as well as the Facebook page, since OCF vets everything. All of these "woo woo" cures, as Charm would say, are out there floating around. I was glad to see that nobody agreed with her on this. One of my coffee shop buddies posted the John's Hopkins hoax about a month ago, and took it down when I told her it was a hoax, thank goodness. She has a tendency to post a lot of stuff without checking them out, too...a lot of political stuff, too.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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