Hi Don,

My husband had almost the same experience as you -- a recurrence of mouth sores and lump in the neck. He was given antibiotics, the sores went away but not the lump. The ENT's looked and took needle biopsies and the results were inconclusive. He then had a quadroscopy which confirmed the diagnosis of Stage IV BOT cancer. He has just completed 35 sessions of radiation and two of the three scheduled chemo (Cisplatin) because he developed deep vein thrombosis after the second round of chemo. He did not have induction chemo but as far as the RO could tell, the lymph nodes have responded to treatment. His reasoning is if the lymph nodes have responded, then the primary tumor should have,too. We are now in post Tx and waiting for the seven weekday Tx meeting. It has been an eventful roller coaster ride for us. I wish you a smoother journey than we have had. It is a tough road to take, but you will get through it. The members of this forum are amazing, come back often for support and information.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.