 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Betty,
You are truly an angel to be taking on the role you are. Your sister is so fortunate to have you by her side and all the love around her. You be sure and take some time for yourself every now and then. It will be very tough on you, too, and periodic recharges are necessary so you can be all you want to be for your dear sister. I am so sorry all of you have to go through such a rough time. As you know, cancer affects the entire cirlce of family and friends.
It sounds like you have a lot to ingest right now and an enormous amount of knowledge to get you started. If there is anything you need an answer to, there are tremendous resources available for you here. If you just need someone to lean on from time to time, we are all here for you!
May God continue to bless you and your family.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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