Betty: You came to the right place. No one here will think you are selfish only thinking of yourself. With this disease, we all think of ourselves only at times because it is such a nasty disease. Don't worry about it. And you don't sound simple, no one here knew much about cancer until we got up close and personal with it either. Then you go into study mode and find out about it. That's one of the reasons for this website, to educate, so go ahead and review the postings here. My cancer is different than your sisters, but my treatment was similar. Radiation, chemo, surgery. Radiation is very difficult. If your sister is already having trouble with eating, she may want to get a feeding tube, known as a peg, so she can consume liquids and keep her weight up. During radiation, she will probably have more and more problems with eating. I eventually could not even swallow my own spit, what little I had left. All of us react differently to treatment, but generally, what I found at least, was that chemo was the easiest, surgery was middle and radiation was the worst. It sounds like you also need to get her to a cancer center with a full team to address her mental state, to help with her husbands feelings of being deserted, with the feelings you and your parents are going to have and all the other things coming up. There is so much more that you will have to face. I'm sure others will also respond to you, people who have had tongue issues. Just hang in there, do all you can, stay calm, worrying never helped anybody and keep reading current and past postings here because the real situation is dealt with every day. Meanwhile, you and your sister and the rest of the family will be in my prayers.


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.