Hi Cindy, sorry to hear this. My husband too had a reoccurrence and had to have his larynx removed. He also had a total glossectomy etc.
I know that this is daunting and so life changing, but it is very doable.
I hope that you have a treatment plan in place very shortly. Do get this done ASAP.
Always here to support you through this.
Tammy

Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!