Thanks to you all for responding to my message. I am sorry we are all here but am grateful for the support we can provide each other.

We liked the oncologist who requested we have the hospital's pathology department send my slides to his office for further study. Once he's taken a look at those he'll be able to determine exactly how much more tongue to remove. He suggests doing a selective neck dissection at the same time, which we agree is necessary. We didn't discuss radiation or chemo yet as we won't know what's what until the lymph nodes are checked. More waiting after surgery. Grrrrr....

I have help in researching all that needs to be researched, because all I really feel up to doing these days is that which I can control, which is my normal routine with the kids and my husband. My family and friends have been terrific in keeping calm and being the brains for the research I find overwhelming.

I look forward to reading more of the posts on this site and getting to know some of you better.

As a neighbor said, I am a cancer kickin' warrior! Keep up the fight!

Last edited by Katie B; 10-22-2012 05:16 PM.

10/2/12 Surgery Dx Stage II SCC RLT
11/12/12 Further tongue resec and SND. 3 of 22 lymph + SCC Stage IVa
11/22/12 Hospitalized for infection incision at neck
12/5/13 PET scan tumor at BOT
12/26/12-2/27/13 RT and Cisplatin
4/1/13-5/17/13 3 rounds of Cisplatin, Taxotere and 5-FU
7/19/13 Pet Scan possible recurrence
8/23/13 2nd op at MSKCC, CT Scan
8/31/13 MRI. Both show sizeable mass
9/11/13 CT-guided needle BX + SCC
10/1/13 Erbitux, Cisplatin and Taxotere
2/14/14 Passed away