"OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | I feel your terror. I don't know. What will a CT change? . Do you really want to know how things have progressed ? Sometimes I think ignorance is bliss. It's this awful fear of the unknown and impending loss. If it does erode an artery it will be quick and there won't be anything to do except hold his hand. In the meantime you have him at home where you can be together. These are precious times. Here in NZ Hospice also supports the patient and family at home. Maybe you should contact hospice and they can support the two of you. Both with advice and practical help. Maybe just talking to them about your fears will give you enough reassurance to cope. I hope this helps Sue. Tammy.
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
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