OP Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jamie,
I know how tough this must be on both you and your mother. Studies have shown that chemo during radiation helps the radiation. I spent some time in and out of the hospital during the chemo phases, too, but only because I thought it was better to do what was most effective.
I hope the doctors are able to ease the pain and deal with the complications and side effects. I pumped in 2-3 bags of fluids at home for many months. Try to not worry and keep asking the doctors questions until you have peace of mind. They will assume you have no questions if you don't ask. The can explain everything they are doing to the point you regain confidence that they are trying their hardest to kill the cancer beast.
Hang in there, it will be tough for a while.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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