I moved jbentnwolfe here to start a separate thread.
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jbentonwolfe
Member
Member # 1353

posted June 03, 2004 05:48 PM
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HI, I JUST SIGNED UP TODAY, AND I DONT KNOW EXACTLY HOW THIS WORKS, I HAVE READ SEVERAL OF THE LETTERS AND THEY ARE ALL VERY ENCOURAGING. MY MOM WAS JUST DIAGNOSED WITH SALIVARY GLAND CANCER TWO WEEKS AGO. SHE IS 58 YEARS OLD AND NOT A DRINKER OR SMOKER, SO FAR IN TWO PAST WEEKS SHE HAS BEEN THROUGH TWO NEEDLE BIOPSYS, TWO OPEN BIOPSYS, PEG TUBE, AND THEY ARE GETTING READY TO START HER ON CHEMO/RADIATION. I WOULD APPRECIATE ANY ONE OUT THERE THAT HAS HAD SIMILAR CIRCUMSTANCES TO REPLY. THANKS

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jbentonwolfe

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Posts: 1 | From: san diego ca | Registered: Jun 2004 | IP: Logged

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023