Hiya
I can relate so much to your problem, though I do have some taste (mainly bad it has to be said!)and I agree with Joan of Arc's and Zengalib's comments too..even in hopsital when I was throwing up all the time and stuffing a mucous suction tube in my mouth, I'd be watching cookery programmes...why?? I didn't understand. I still am addicted to anything to do with eating on the TV, even the trashy progs like Come Dine With Me which we have in the UK, not sure if you have it over there? I think it's connecting me with the memory that food can be a pleasure cos it sure isn't any fun now, what with pain, mono diets of the weeks acceptable food (which changes for no apparent reason) and the time it takes to eat is socially isolating - let alone the spitting which for me, may start if my throat gets very sore. I get like a film coating in my mouth and throat when I get intense pain and all in all, if that lot doesn't put you off I don't konow what would.
I am interested in the differences in American and British care. I am particularly amazed to hear that some areas may have the legal capacity to prescribe medical marijuana - I never knew that. I've never smoked so would need that in a spray or something, cos not even a brownie cooked up with it would now work cry
Today is a hard day for me, water is hurting today n that's officially a 'bad day'. I do however, unlike you, get hungry. I just can't do anything to satisfy it! It's pretty much torture sitting at home feeling hungry but only able to pop some fluid down the peg - it seems to do nothing to stop those hunger pangs!!
Do let us know how you're getting on please,
Hugs
Lynne


BOT dx via Pe/CT combined scan Mar2012
Spread to node-removed.
HPV 16 +
Cisplatin x2, RT x30 June & July 2012.
Peg in situ 06 2012 & 1 tooth out.
Visual scope clear Oct 2012
Veggie, never smoked or drink much (polish halo!), no caregiver. Aged 58, Lynne in Scotland