Hi Karen

Goodness what a complicated issue you have. I have zero knowledge or experience with MDS or BMT, so will need to leave that to the doctors.

You are obviously well researched in this area, what are your major concerns? Are you concerned your new immune system won't cope with whatever treatment is recommended or is this too simplistic? I would imagine that chemotherapy might create some issues. Any chance of getting one of your old doctors to consult with the current team?

You obviously know to go straight to the best treatment centres so your support network is clearly top notch. This has to be a very good thing and in my opinion, probably the best thing you can do for yourself. The second best thing is to arm yourself with knowledge, which I note you are also doing. Seems to me that you are all sorted.

The thing that jangles some bells though is the idea that lymph nodes are involved on BOTH sides of your neck. I think that might be a bit peculiar. Maybe someone will come along and explain or correct this if I have this wrong? My understanding is that SCC tends to hit one side or the other...?

Maybe once you have a treatment plan, we will be better able to support you and offer useful information?

Karen