Hi Cheryl. Yes, these are all scary things about radiation and they sound remarkably similar to what I've been through with the bone marrow transplant. I spent 3-1/2 weeks hospitalized and another month and a half living in an apartment across the street from the hospital to go for daily clinic visits and to be close in case of emergency. I had severe mucositis from head to bottom. I couldn't eat properly for a year (so hard to contemplate giving that up again), my hair is permanently too thin to wear in anything more than a short stubble, my skin is mottled with hyperpigmentation, and I must be ever vigilant for infection, and signs of graft vs. host disease. My eyes and mouth are permanently dry although improved over what they were the first year. And I'm one of the lucky ones who has avoided immunosuppressants, steroids, and infections. The one good thing is that I can never clean litter boxes again :-), a big deal when you have 6 cats. Thanks for the hugs! They're much appreciated.


mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads