Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF! This site is full of very experienced survivors and caregivers of oral cancer. I myself do not know a thing about MDS or BMT. I would be very surprised if anyone here did. I have never seen it discussed on the forum before. I am hoping your MDS doc will know all about the ramifications of battling cancer after being treated for that. If not there could be a specialist at your cancer center that could be part of your team.
You are doing the right thing by heading immediately to a large cancer center. You have chosen one of the top cancer centers in the country. To prepare for your upcoming appointment, check out the main OCF pages. Read thru diagnosis and treatment sections so you know what you will be facing. This website has the most up to date, accurate medical info about everything relating to oral cancer. By learning and researching your disease you will become a knowledgeable patient who is well prepared. The forum is a wonderful place to read about what others have gone thru and to get answers to your questions. It can also be a bit scary when reading about people who have gone thru very difficult times. Just remember everybody is different and will respond in their own ways to treatments, procedures and medications.
Dont be a stranger! Best wishes with everything!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |