 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | If it is BOT or tonsil primary and HPV+ then IMO they will recommend concurrent chemo and radiation. Chemo most likely Cisplatin given in either 3 big bags or 6 smaller bags (my preference) and the rad administered daily (no weekends) for 7 weeks with appx 70 gys. If it is tonsil Primary they may take them but usually BOT primaries are left alone. In my case the BOT primary was so small that they thought the biopsy may have taken the whole primary. They told me years later that sometimes the body clears the primary but not before it sheds off to a node wher it is usually discovered first in cases of HPV positive SCC.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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