Kevin only had 2 tx of the Cistplatin, Taxotere and 5fu. They wanted to do Carboplatin (sp) with the Erbitux and IMRT, but he declined. It was his decision and I let him make it. Now, of course he is doubting that decision.
As everyone has said, the smaller doses are going to be easier to handle. If he loses some hearing, that's what they make hearing aides for. Kevin is now in the process of testing at his work in Alaska because of the hearing loss. They have to prove it is from the Cistplatin and not an OSHA recordable incident. Kind of a hassle but you gotta jump through the hoops.
Hope that you can find some peace and make a decision soon. Oh, we also did NOT have surgery and had multiple nodes involved. However only one of the nodes was tested. Our MO did not think surgery was necessary if we hit it with the big chemos. He said he wanted him to keep the nodes for his immune system later. I know most everyone has had surgery, but we did not.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14