Tim
I would not do anything if I were you. Why? Because you had the classic signs of
Erbitux really working on your cancer: the acne rash. Your description of it in the posts matches what I have read to be really good prognosis. It sounds to me like your doctors have been giving you good advice.
I did not have the acne rash. That is a bad sign.
Obviously
Erbitux works for some people. Nobody doubts that.
You should be feeling better and better. When
Erbitux works, it really is a miracle drug.
Also , I was the most proactive guy possible, calling on old friends who were oncologists, double checking my CCC doctors and I made the exact same decision you did so I don't think that's a factor.
Last but not least, you do not want Surgery if you can avoid it. Your ENT is right about that.
there is no reason to think that you will not be like DavidCPA, one and done.
If you look at my old posts you will see that I am one of the "frankest" posters here and never sugar coat it. While it's easy for me to say: don't worry, I know that it's hard (plus when you figure out how not to worry, you will have to share the secret with me). Enjoy those kids now and for a long time
Charm