Indy,
It sounds like you are doing well to get through IMRT and chemotherapy. It is a tough go, my thoughts and prayers are with you. My father was also treated at Cleveland Clinic for SCC stage 2~3, from 12/29/03 - 2/18/04, by Dr. Saxton, Dr. Fleming, and Dr. Wood. My Dad had a line of cancer from his lip to his ear, he has had leukoplakia for 10-15 years. There was lymph node involvement, 2 nodes I believe. He was quite ill through IMRT, received no chemotherapy, or amifostine. He had 33 IMRT treatments, 3 Boost treatments, and 5 days of brachytherapy. He found that if he mixed baby food cereal with the nutritional drinks that he wouldn't be so sick to his stomach. His stomach was more sick from the morphine patch than from the radiation., but the excessive mucous had a lot to do with that too. He has been finished with treatments since Feb. 18th, he is happy to report that at least 60% of his ability to taste is back. He works everyday, and doesn't seem exhausted as I feared. He had a lot of saliva during treatment, and has only lost it within the last month or so, 2 months post radiation. My Dad doesn't drink much water, so I believe that could contribute to the dry mouth. We haven't gotten a clean diagnosis yet, but we are very hopeful.

I pray that this will be behind you soon, and that you will be back to paddling in some peaceful waterway soon.

Best regards,
Deb


Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"