 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I tried the amifostine (Ethyol) and about four weeks into it I got violently ill about one hour after the radiation and my fever would spike to 104 in about 15 minutes. I ended up in the hospital and they tried to give me the Ethyol in a more controlled environment and determined I had somehow developed some type of allergic reaction to it. I went through about every anti-naseau drug know to man and still would vomit exactly one hour after radiation. I am probably in trouble for this but a friend gave me some pot and said try this when you feel naseaus and it kept me from vomitting instantly. I still got the fever, though and ultimately stopped the injections (and the pot). My fear with the pot was that I was a chronic pothead for 25-30 years and feared this brought on the cancer. I tried Marinol (pot pills) but it didn't help, just made me sleep more.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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