 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | For all of you extolling the benefits of the PEG tube, and there are obviously many, please keep in mind that the user MUST continue to use their swallowing muscles daily or they might end up with lifelong swallowing issues post Tx.
I also do not for the life of me see why more patients are not given the option of or even told about the nasal tube. I refused to have a PEG and paid a hefty price but was talked into a nasal tube in my 2nd week post Tx when I was literally near death because of my stubbornness/igornance. It took less than a minute to "install"; I used it for 2 weeks and I pulled it out myself at home.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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