It does get better, or maybe we caregivers just get used to it. When we were at the point you are at I recall just feeling overwhelmed because the ground was shifting so fast under my feet. Now he/we are adjusting to the new way things are -- problems with swallowing, textures, spices, energy level. In time you might view these as good problems to have, considering the alternative. Thinking of you and all the best.

CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.