Hi,
Where is Fire Island?
It sounds as though your hubby and my hubby were pretty close in their tx. The only difference is mine had MUCH more chemo before the radiation. He had a small break before we started radiation and the Erbitux. Everyone is giving good advice though as far as how it is going to get worse before it gets better. Hang in there though, it does get better. Kevin ate scrambled eggs almost every day until towards the end of tx. the he only drank Ensure and milkshakes for maybe 2 weeks, then back to eggs and eventually oatmeal. He still eats oatmeal in the am as it goes down the best. The rest of the day is better and he pretty much eats what he wants.
The dry mouth is also going to get worse. Kevin carried water everywhere we went and sipped continuously.
Best of luck. Hang tough and keep in touch!!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14