OP "OCF Canuck" Contributing Member (25+ posts) Joined: May 2012 Posts: 47 | Hey Cheryl,
Sorry you had to go through all of that. At least you caught it now.
The hospital is very good and the docs are great, the nurses are fantastic. All the nurses have a very positive attitude, except for one, I was very happy with them.
One thing actually got missed, they forgot about the stitches on my 3 ft incision on my left thigh. When I asked Dr. Bayley when I saw him last Thursday, he said he will get someone to take care of it, but no one has yet. The only contact I have is Dr Irish's secretary so my daughter has been emailing her asking about this. She has been a great supporter and advocate for me, asking lots of questions, doing the research on site like this one, and asking her doctor friends.
I hope I make it through the chemo and radiation alright. I read with horror with the type of reactions people have in the other forums and frankly, I am a little shaken up. I can only pray for extra mercy from God!
I read that it is better to have many lighter doses than few strong ones. I don't know if it is the case for me. I will ask the chemo oncologist when I see him.
I've had a G-tube put in while I was at the hospital recovering from the surgery. I need to use it because of my complete glossectomy. I cannot swallow at this point in time. I have been feeding through it entirely ever since. Yhey've given me Isosource 1.5 for food, but the dietitian for some reason only prescribe 5 cans a day, which only provides 1800 kcal, which is not enough. So after talking to the home care dietitian, I increased it to 8 cans daily, which provides a more reasonable 3000 kcal. I'vs lost 25lbs and want to regain some of it back.
Joseph 59 male pain in tongue strt 2/10/12, Dx SCC 3/19/12, confirmed Stg IV 4/5/12, Total Glsctmy & recon w/ flap from L thigh, neck disct, trach 4/27/12 G-Tube 5/1/12 55 nodes all clear completed 2 chemo 33 rad non-smoker, non-drinker, exercise daily, mostly vegetarian diet...go figure
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