"Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | Hi. Sorry you and your hubby are having to go through this. You have found a great place for support though. We have all been there, either as the caregiver or the patient. The tx is VERY hard. Kevin was 52 and the Cistplatin was a rough time, although he had 2 other chemos at the same time. We also had radiation 2x day. How many weeks will he be doing this? You are keeping his weight up, so that is good. Is he allowing himself to sleep when his body wants him to. Kevin slept much of the time. It's ok for your hope to wane, and one of the hardest things for me was to keep the positive attitude while in front of the kids and Kevin. I would cry in the shower, or just go for a walk and scream and pray and cry some more. Then by the time I got back home I was ok again. Please don't feel bad for that. It's normal and we love our guys and it's soooo hard to see them suffering. Please stay in touch and let us know how things are progressing. Blessings, Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 |