Welcome to OCF! Im glad you have found this site to help get you both thru the treatments. Hope you have learned alot during your weeks of lurking. There are many pages of important info on the main OCF pages also.

Sorry to hear your husband is not doing very well with his treatments. Is it possible that on chemo days that the extra hydration is what is helping him to feel a little better? Every single day your husband needs to take in a minimum of 2500 calories and 48 oz of water. His body is burning up calories and fluids at an amazing rate while he is fighting this. Im glad to hear he has put on 5 pounds, that means he is doing ok with his feedings. Weight can be difficult to keep on during treatments. Sometimes it takes a few different formulas before the patient can stomach it. Your husband will need to swallow every single day even if he has a sore throat. The swallowing muscles can 'forget' how to work and it can be very difficult to regain the use of that function once it is lost.

You can get formula with fiber or add benefiber to the formula. This can help with the diarrhea. Immodium will also help. Make sure the doctor and nutritionist are aware of the diarrhea and his inability to urinate. It sounds to me like he may be dehydrated from the diarrhea. Try some gatoraid to help with the loss of electrolytes. When I was dehydrated, I felt horrible so I can just imagine how bad he feels.

Take things day by day. Nutrition and hydration are the key to making it easier to get thru. Make this your goal every single day. Feel free to ask questions, we are here to help. Good luck with everything!





Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile